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Articles/Articoli

Vol. 10 No. 1 (2019): Disabilità e Qualità della Vita: percorsi e progetti per l’inclusione universitaria e sociale

Quality of Life and intellectual disability: Implementing the POS Scale in a case study

Submitted
aprile 23, 2019
Published
2019-06-12

Abstract

This paper sheds light on the combination between Quality of Life and Adulthood, focusing on the analysis of a case study. The considerations concerning the theoretical framework of reference, or the epistemological frame of the Quality of Life, allow to draw the more or less satisfactory perceptions on the life of an adult with intellectual disabilities, aiming to log regressions and improvements after a longitudinal trail that lasted two years.

References

  1. Balboni G., Coscarelli A., Giunti G., & Schalock R.L. (2013). The assessment of the quality of life of adults with intellectual disability: The use of self-report and report of others assessment strategies. Research in Developmental Disabilities, 34(11): 4248-4254.
  2. Boehm T.L., & Carter E.W. (2019). Family Quality of Life and Its Correlates Among Parents of Children and Adults With Intellectual Disability. American Journal on Intellectual and Developmental Disabilities, 124(2): 99-115.
  3. Brown I., Brown R.I. (2009). Choice as an aspect of quality of life for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 6: 11-18.
  4. Brown I., Keith K.D., & Schalock R.L. (2005). Quality of life conceptualization, measurement, and application: Validation of SIRG-QOL consensus principles. Journal of Intellectual Disabilities Research, 48: 451.
  5. Crespo M., Bernaldo de Quiros M., Gomez M. M.; Hornillos C., (2012). Quality of Life of Nursing Home Residents with Dementia: A Comparison of Perspectives of Residents, Family, and Staff. Gerontologist, 52(1): 56-65.
  6. Ciani A. (2017). Progettare interventi e servizi educativi per il “dopo di noi”: educare
  7. all’autodeterminazione. Studium Educationis, XVIII(3): 149-150.
  8. De Windt E. & Lannau S. (2009). Vergelijking van de Kwaliteit van Bestaan van mensen met een verstandelijke beperking met andere burgers uit de Zeeuwse samenleving (Ongepubliceerde masterproef). België: Universiteit Gent.
  9. Efklides A., Varsami M., Mitadi I., Economidis D. (2006). Health Condition and Quality of Life in Older Adults: Adaptation of QOLIE-89. Social Indicators Research, 76(1): 35-53.
  10. Finlay W. M., & Lyons E. (2001). Methodological issues in interviewing and using self-report questionnaires with people with mental retardation. Psychological Assessment, 13(3): 319-335.
  11. Faragher R., Ommen M.V. (2017). Conceptualising Educational Quality of Life to Understand the School Experiences of Students With Intellectual Disability. Journal of Policy and Practice in Intellectual Disabilities, 14(1): 39-50.
  12. Giaconi C. (2012). Nella comunità di Capodarco di Fermo: Dalle pratiche all’assetto
  13. pedagogico condiviso. Roma: Armando.
  14. Giaconi C. (2015). Qualità della vita e adulti con disabilità. Percorsi di ricerca e prospettive inclusive. Milano: FrancoAngeli.
  15. Giaconi C., Del Bianco N. (2017). Paths and Technologies in the Life Project of People with Disabilities: International Perspectives and Educational Potential. Research on Education and Media, 10(2): 40-54.
  16. Goodley D., Armstrong D., Sutherland K., & Laurie L. (2003). Self-advocacy, learning difficulties, and the social model of disability. Mental Retardation, 43(3): 149-160.
  17. Goksel Karatepe A., Kaya T., Gunaydn R., Demirhan A., Ce P., Gedizlioglu M. (2011). Quality of Life in Patients with Multiple Sclerosis: The Impact of Depression, Fatigue, and Disability. International Journal of Rehabilitation Research, 34(4): 290-298.
  18. Gómez L.E., Verdugo M.A., & Arias B. (2007). Validation of the eight-domain model of quality of life. Presentation at the ISQOL Conference: International Society for Quality-of-Life Studies. San Diego, CA, December 6-8.
  19. Gómez L.E., Verdugo M.A., Arias B. Navas P., Schalock R.L. (2013). The development and use of provider profiles at the organization and systems level. Evaluation and Program Planning, 36: 80-87.
  20. Jenaro C., Verdugo M.A., Caballo C., Balboni G., Lachapelle Y., Otrebski W., Schalock R.L. (2005). Cross-cultural study of person-centred quality of life domains and indicators: a replication. Journal of Intellectual Disability Research, 49(10): 734-739.
  21. Guàrdia-Olmos J., Carbó-Carreté M., Peró-Cebollero M. & Giné C. (2017). Item response theory analysis applied to the Spanish version of the Personal Outcomes Scale. Journal of Intellectual Disability Research, 61(11): 1021-1033.
  22. Prieto-Flores M.E., Moreno-Jimenez A., Fernandez-Mayoralas G., Rojo-Perez F., Forjaz M.J., (2012), The Relative Contribution of Health Status and Quality of Life Domains in Subjective Health in Old Age. Social Indicators Research, 106(1): 27-39.
  23. Schalock R.L. (2005). Introduction and overview to the special issue on quality of life. Journal of Intellectual Disability Research, 49: 695-698.
  24. Schalock R.L., Bonham G. S., & Marchand C.B. (2000). Consumer based quality of life assessment: A path model of perceived satisfaction. Evaluation and Program Planning, 23: 77-88.
  25. Schalock R.L., Bonham G.S. & Verdugo M.A. (2008). The conceptualization and measurement of quality of life: implications for program planning and evaluation in the field of intellectual disabilities. Evaluation and Program Planning, 31: 181-90.
  26. Schalock R.L., Brown R., Cummins R.A., Felce D., Matikka L., Keiyh K.D., Parmeter T. (2002). Conceptualization, Measurement, and Application of Quality of Life for Person With Intellectual Disabilities: Report of an International Panel of Experts. Mental Retardation, 40(6): 457-470.
  27. Schalock R.L., Gardner J.F., & Bradley V.J. (2007). Quality of life for people with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual and Developmental Disabilities.
  28. Schalock R.L., Keith K.D., Verdugo M.A., & Gómez L.E. (2010). Quality of life model development and use in the field of intellectual disability. In: Kober R. (Ed.). Enhancing quality of life for people with intellectual disability: From theory to practice (pp. 17-32). New York: Springer.
  29. Schalock R.L., & Verdugo M.A., (2002). Handbook on Quality of Life for Human Service Practioners. Washington DC: American Association on Mental Retardation.
  30. Schalock R.L., & Verdugo M.A. (2006). Manuale di qualità della vita. Modelli e pratiche di intervento. Brescia: Vannini Editoria Scientifica.
  31. Schalock R. L., Verdugo M.A., Jenaro C., Wang M., Wehmeyer M., Jiancheng X., et al. (2005). A cross-cultural study of QOL indicators. American Journal on Mental Retardation, 110(4): 298-311.
  32. Schalock R.L., Verdugo M.A., Gomez L.E., & Reinders H.S. (2016). Moving Us Toward a Theory of Individual Quality of Life. American Journal on Intellectual and Developmental Disabilities, 121(1): 1-12.
  33. Schalock R.L. & Parmenter T. (2000). Preface. In Quality Of Life: Its Conceptualization, Measurement, and Application, A Consensus Document. IASSID: Washington.
  34. Scott H. M., & Havercamp S. M. (2018). Comparisons of self and proxy report on health-related factors in people with intellectual disability. British Journal of Learning Disabilities, Online Early, 31(5): 927-936.
  35. Simões C. & Santos S. (2017). The Impact of Personal and Environmental Characteristics on Quality of Life of People with Intellectual Disability. Applied Research in Quality of Life, 12(2): 389-408.
  36. Smith J.A., & Osborn M. (2003). Interpretative phenomenological analysis. In: Smith J.A. (ed.). Qualitative Psychology (pp. 51-80). London: Sage.
  37. Striano M. (ed.) (2010). Pratiche educative per l’inclusione sociale. Milano: FrancoAngeli.
  38. Taylor S. J. (1994). In support of research on quality of life, but against QOL. In: Goode D. (ed.). Quality of life for persons with disabilities: International perspective and issues (pp. 260-265). Brookline, MA: Cambridge.
  39. Van Havere T. (2011). Onderzoek naar kwaliteit van bestaan en onafhankelijke cliëntondersteuning bij gebruikers van ADO Icarus vzw en Zewopa vzw. Onderzoeksrapport. Gent, België: Hogeschoo.
  40. Van Hove E., Vandevelde S., Claes C., van Loon J., Verschelden G., & Van Hove G. (2011). Samenvatting ‘behoefteonderzoek naar personen met een handicap en personen met een chronische ziekte in gent’. Stad Gent. Geraadpleegd via
  41. http://www.gent.be.
  42. van Loon J.H.M., Van Hove J., Schalock R.L., & Claes C. (2008). Personal outcomes
  43. scale. Gent, Stichting Arduin, Universiteit Gent.
  44. van Loon J., Van Hove G., Schalock R.L., & Claes C. (2009). Personal Outcomes Scale: Administration and Standardization Manual. Middelburg, the Netherlands, Stichting Arduin and Gent, Belgium, University of Gent.
  45. van Loon J.H.M. Gordon S.B., Peterson D.D., Schalock R.L., Claes C., Decramer A.E.M. (2013). The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability. Evaluation and Program Planning, 36(1): 80-87.
  46. van Loon J.H.M., van Hove G., Schalock R.L., Claes C. (2017). POS-Personal Outcomes Scale. Versione italiana. Protocollo (Adattamento italiano di A. Coscarelli e G. Balboni). Gussago, Brescia: Vannini Editoria Scientifica.
  47. Verdugo M.A., Arias B., & Gómez L.E. (2006). Escala integral de medición subjetiva y objetiva de la calidad de vida en personas con discapacidad intelectual. In: Verdugo M.A. (Dir.). Como mejorar la calidad de vida de las personas con discapacidad. Instrumentos y estrategias de evaluación (pp. 417-448). Salamanca: Amarú.
  48. Verdugo M.A., Gómez L. E., Arias B., & Martin J.C. (2006). Validation of the eight domain model of quality of life. Presentation at the symposium on quality of life outcomes: Their empirical development, verification, and use. International symposium on social inclusion, Montreal, CA, May 2-6.
  49. Verdugo M.A., Gómez L.E., Arias B., & Schalock R.L. (2010). The Integral Quality of Life Scale: Development, Validation, and Use. In Kober R. (Ed.). Enhancing quality of life for people with intellectual disability: From theory to practice (pp. 47-60). New York: Springer.
  50. Verdugo M.A., Schalock R.L., Keith K.D., & Stancliffe R.J. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49: 707-717.
  51. Verdugo M.A., & Schalock R.L. (2001). Cross-cultural survey of quality of life indicators. Salamanca: Institute on Community Integration, Faculty of Psychology, University of Salamanca.
  52. Wang M., Schalock R.L., Verdugo M.A. & Jenaro C. (2010). Examining the factor structure and hierarchical nature of the quality of life construct. American Journal of Intellectual and Developmental Disabilities, 115: 218-233.
  53. Zappella E. (2018). Quality of life and professional orientation for people with
  54. intellectual disability: a case study in Lombardy. Form@re - Open Journal per la formazione in rete, 18(3): 207-219.

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