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FrancoAngeli Journals

Articles/Articoli

No. 2 (2025)

Representations and Meanings of the Individual, Personalized and Participatory Life Project: Pedagogical Perspectives from the Narratives of Parents and Young Adults with Disabilities

DOI
https://doi.org/10.3280/ess2-2025oa21204
Submitted
ottobre 6, 2025
Published
2025-12-11

Abstract

This article examines how the individual, personalised, and participatory life project (Italian Legislative Decree 62/2024) is understood and depicted in the narratives of parents and young adults with disabilities. Situated within the rights-based framework, the study employs a qualitative, narrative–participatory approach to explore how life projects are envisioned, experienced, and shaped in daily contexts. Thematic analysis of interviews reveals how desires, supports, and environments interact to influence local self-determination, making artistic and employment practices, relationships, and immediate networks tangible sites of the project. Parents and young people agree that the life project is not just about technical compliance but a practical fabric of relationships and meaningful choices, where quality is measured through participation, continuity, and social recognition. Narrative functions as both an epistemic and pedagogical practice that amplifies participants’ voices, produces context-specific knowledge, and guides the development of supportive environments, thereby transforming the rights paradigm into everyday educational practice.

References

  1. Biancalana V., Canevaro A. (2019). Progetto di vita e progetto per vivere. Pedagogia Più Didattica, 5: 2-10.
  2. Birt L., Scott S., Cavers D., Campbell C., Walter F. (2016). Member checking: A tool to enhance trustworthiness or merely a nod to validation?. Qualitative Health Research, 26(13): 1802-1811.
  3. Braun V., Clarke V. (2006). Using thematic analysis in psychology. Qualitative research in psychology, 3(2): 77-101.
  4. Braun V., Clarke V. (2021). Thematic Analysis: A Practical Guide. London: Sage.
  5. Colla R.H., Kurtz C.F. (2024). Storying research: Exploring the benefits of participatory narrative inquiry as a methodology for wellbeing research. International Journal of Applied Positive Psychology, 9(3): 1-20.
  6. Deci E.L., Ryan R.M. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55(1): 68-78.
  7. Etikan I., Musa S.A., Alkassim R.S. (2016). Comparison of convenience sampling and purposive sampling. American journal of theoretical and applied statistics, 5(1): 1-4.
  8. Griffo G. (2009). Se le persone con disabilità vengono incluse nella società. Gruppo Solidarietà. -- https://www.grusol.it/informazioni/07-05-09bis.PDF.
  9. Griffo G. (2005). Diritti umani per le persone con disabilità. Pace Diritti Umani, 3: 37-61.
  10. Griffo G. (Ed.). (2019). Il nuovo welfare coerente con i principi della CRPD. Roma: Comunità.
  11. Lepri C., Francescutti C. (2025). Scrivere a matita i progetti delle persone. Animazione Sociale, 2: 22-33.
  12. Marchisio C.M. (2024). Il progetto personalizzato e partecipato. In: C. Tarantino (a cura di). Il soggiorno obbligato. La disabilità fra dispositivi di incapacitazione e strategie di emancipazione (pp. 503-530). Bologna: il Mulino.
  13. Marchisio C., Curto N. (2022). Progetto di vita e paradigma dei diritti. In H. Demo, S. Cappello, V. Macchia, Didattica e inclusione scolastica Inklusion im Bildungsbereich, 203-215, Bozen-Bolzano: University Press.
  14. McFarland B., Bryant L., Wark S., & Morales‐Boyce T. (2024). Adaptive interviewing for the inclusion of people with intellectual disability in qualitative research. Journal of Applied Research in Intellectual Disabilities, 37(1).
  15. Nigar N. (2020). Hermeneutic phenomenological narrative enquiry: A qualitative study design. Theory and Practice in Language Studies, 10(1): 10-18.
  16. Nowell L.S., Norris J.M., White D.E., & Moules N.J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International journal of qualitative methods, 16(1).
  17. Piccione D. (2023). Costituzionalismo e disabilità: i diritti delle persone con disabilità tra Costituzione e Convenzione ONU. Torino: Giappichelli.
  18. Sousa C., Neves J.C., Damásio M. J. (2022). Empowerment and well-being through participatory action research and accessible gaming: a case study with adults with intellectual disability. Frontiers in Education, 7.
  19. Tarantino C., Griffo G., Bernardini M.G. (2021). La discriminazione delle persone con disabilità. Un deficit di cittadinanza. Minority Reports. Cultural Disability Studies, 235-252.
  20. Tassé M. J. (2005). Guidelines for interviewing people with disabilities: Supports Intensity Scale. American Association on Mental Retardation.
  21. Zuttion R. (2022). Il budget di salute come pratica di personalizzazione: l’esperienza del Friuli-Venezia Giulia. Spiritualità e Qualità di Vita, XIII.