Skip to main navigation menu Skip to main content Skip to site footer
FrancoAngeli Journals

Articles/Articoli

Vol. 10 No. 1 (2019): Disabilità e Qualità della Vita: percorsi e progetti per l’inclusione universitaria e sociale

La ‘variabilità linguistica’ del costrutto di Qualità della Vita. Uno studio sugli atteggiamenti degli operatori del servizio di orientamento

Submitted
maggio 24, 2019
Published
2019-06-14

Abstract

The article deals with the dynamic aspect of the 'Quality of life' (QoL) construct, focusing on the attitudes of some operators of orientation services and social inclusion on domains of it.

In the first part a brief logical-critical analysis of the QoL construct is conducted: starting from its 'dynamic' character, those aspects that allow to assume it as a possible fuzzy concept will be underlined.

In the second part, a study on the multi-factorial model of Schalock and Verdugo - within the ‘LabInclusion’ research-training coordinated by the For.Psi.Com Department of the University of Bari and carried out in 2017 - is described.

The study on the attitudes of 71 operators involved in the post-diploma orientation service of Taranto, towards the factors and domains of the multifactorial model, has been conducted with a mixed method through questionnaire and documentary analysis of products and highlighted the substantial ‘reinterpretation’ of the 'Rights and empowerment' and 'Material well-being' domains.

The study restates, in general, the 'linguistic variability' as well as the 'inter-intra-individual personal variability' of the QoL construct and invites to pursue in the search for more advanced and interdisciplinary methods for the estimation of the variance of complex measures, such as the indicators of QoL (Betti et al., 2016).

References

  1. Allison J.P., Locker D., Feine J.S. (1997). Quality of life: A dynamic construct, Social Science & Medicine, 45(2), 221-230.
  2. Anfass (2015). Progettare qualità della vita. Report conclusivo e risultati progetto di ricerca ‘Strumenti verso l’inclusione sociale matrici ecologiche e progetto individuale di vita per adulti con disabilità intellettive e/o evolutive’. In http://www.anffas.net/dld/files
  3. Bělohlávek R., Dauben J.W., Klir G.J. (2017), Fuzzy Logic and Mathematics: A Historical Perspective. Oxford University Press, 2017.
  4. Betti G. (2016). Fuzzy measures of quality of life: A multidimensional and comparative approach. International Journal on Uncertain Fuzzy Knowledge-Based System, 24 (Suppl. 1), 25–37.
  5. Betti G., Soldi R., Talev I. (2016). Fuzzy Multidimensional Indicators of Quality of Life. In Social Indicator Research, 127: 39–53.
  6. Booth T., Ainscow M. (2011). Index for Inclusion: Developing Learning and Participation in Schools. Bristol, England: Centre for Studies on Inclusive Education.
  7. Bowen, G. A. (2009). Document analysis as a qualitative research method. Qualitative Research Journal, 9(2), 27-40. doi:10.3316/QRJ0902027
  8. Brown I., Brown R.I. (2005), Quality of life and disability, Kingsley Publishers: London.
  9. Brown M., Gordon W. A. (1999). Quality of life as a construct in health and disability research. Mount Sinai Medical Journal, 66, 160–169.
  10. Carbonari M. (2017). Leggere la Qualità della Vita dell’adulto con disabilità fisica: dall’osservazione dell’ambiente di vita alla rilevazione delle percezioni. Nella Struttura residenziale della Comunità di Capodarco di Fermo. Tesi di Dottorato del XXIX ciclo. Reperibile: https://u-pad.unimc.it/retrieve/handle
  11. Corey L.M., Keyes C.L.M., Magyar-Moe J.L. (2004). The measurement and utility of adult subjective well-being. In Lopez, S.J.; Snyder, C.R. Positive psychological assessment: A handbook of models and measures (411–425). Washington, DC: American Psychological Association.
  12. Cottini L., Fedeli D., Zorzi, S., (2016). Qualità della vita nella disabilità adulta. Percorsi, servizi e strumenti psicoeducativi, Trento: Erickson.
  13. Creswell J.W. (2013), Research Design: Qualitative, Quantitative and Mixed Methods Approaches, Sage, Thousand Oaks, CA.
  14. Croce L., Lombardi M. (2015), Strumenti verso l’inclusione sociale: il disegno sperimentale della Ricerca, in Progettare Qualità di Vita, Report conclusivo e risultati progetto di Ricerca ‘Strumenti verso l’inclusione sociale, matrici ecologiche e Progetto Individuale di Vita per Adulti con Disabilità Intellettive e/o Evolutive’, ANFFAS Nazionale, Roma, 2015.
  15. Cummins, R. A. (2005). Moving from the quality of life concept to a theory. Journal of Intellectual Disability Research, 49(10), 699–706. doi: 101111/j.1365-2788.2005.00738.x.
  16. Dietz R., Moruzzi S. (2009) (eds.), Cuts and clouds. Vagueness, Its Nature, and Its Logic. Oxford University Press.
  17. Disability Research, 49(10), 699–706. doi: 10.
  18. Dovigo F. (2014) (a cura di). Nuovo Index per l'inclusione. Percorsi di apprendimento e partecipazione a scuola. Roma: Carocci.
  19. Esping-Andersen G. (1985). Politics against Markets: The Social Democratic Road to
  20. Power. Princeton, N.J.: Princeton University Press.
  21. Felce D., Perry J. (1995). Quality of life: its definitions and measurement. Research in
  22. developmental disabilities, 16(1): 51-74.
  23. Giaconi C. (2015). Qualità di vita e adulti con disabilità: percorso di ricerca e prospettive inclusive, Milano: FrancoAngeli.
  24. Haack S. (1996). Deviant logic, fuzzy logic: beyond the formalism. Chicago: University
  25. of Chicago Press.
  26. Keyes C.L.M. (1998). Social well-being. Social Psychology Quarterly, 61(2): 121-140.
  27. doi: 10.2307/2787065.JSTOR2787065.
  28. Kosko B. (1993). Fuzzy Thinking: The New Science of Fuzzy Logic. New York: Hyperion.
  29. Kyriazopoulou M., Weber H. (2009). Development of a set of indicators – for inclusive
  30. education in Europe. Odense, Denmark: European Agency for Development in Special Needs Education.
  31. Lupo S. (2009). Complessità pedagogia educazione nel pensiero di Edgar Morin. Catanzaro: La Rondine Edizioni.
  32. Marshall T.H. (1950). Citizenship and Social Class. Cambridge: Cambridge University
  33. Press.
  34. Martinez J. (2018). Mapping Dynamic Indicators of Quality of Life: a Case in Rosario,
  35. Argentina. Applied research in quality of life, 22: 1-22.
  36. Medeghini R., D’Alessio S., Marra A. et al. (2013). Disability Studies. Trento: Erickson.
  37. Morin E. (1999). L’Intelligence de la complexité. Paris: l’Harmattan.
  38. Niero M., Martin M., Finger T. (2002). A new approach to multicultural item generation in the development of two obesity-specific measures: the Obesity and Weight Loss Quality of LIfe (OWLQOL) questionnaire and the Weight-Related Symptom Measure (WRSM). Clinical Therapeutics, 24(4): 690-700.
  39. Nota L., Soresi S., Perry J. (2006). Quality of life in adults with an intellectual disability:
  40. The Evaluation of Quality of Life Instrument. Journal of Intellectual Disability Research, 50: 371-385.
  41. Nussbaum M., Sen A. (Eds.) (1993). The quality of life. Oxford: Oxford University Press.
  42. Perla L. (2013). Per una didattica dell’inclusione. Prove di formalizzazione. Pensa
  43. Multimedia.
  44. Pacek & Freeman (2015). The Welfare State and Quality of Life: A Cross-National
  45. Analysis. In http://citeseerx.ist.psu.edu/viewdoc/download?
  46. doi=10.1.1.489.8918&rep=rep1&type=pdf.
  47. Phillips D. (2006). Quality of life: Concept, quality, practice. London: Routledge.
  48. Ponce O., Pagàn-Maldonado (2015). Mixed Methods Research in Education: Capturing
  49. the Complexity of the Profession. International Journal of Educational Excellence, 1(1): 111-135.
  50. Power M.J. (2004). Quality of life. In: Lopez S.J., Snyder C.R. Positive psychological
  51. assessment: A handbook of models and measures (pp. 427-439). Washington, DC:
  52. American Psychological Association.
  53. Rapley M. (2003). Quality of life research: A critical introduction. London: Sage.
  54. Ryan M. R., Deci E.L. (2008). Facilitating Optimal Motivation and Psychological
  55. Well-Being Across Life’s Domains. Canadian Psychology, 49(1): 14-23.
  56. Schalock R. L., Verdugo-Alonso M.A., Gòmez L. (2010), Evidence-based practices in the field of intellectual and developmental disabilities: an international consensus approach. Evaluation and program planning, 34(3): 273-282.
  57. Schalock R.I., Bonham G.S., Verdugo M.A. (2008). The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the
  58. field of intellectual disabilities. Evaluation and Programme Planning, 31: 181-190.
  59. Schalock R.L., Keith K.D., Hoffman K. (1990). 1990 Quality of Life Questionnaire
  60. Standardization Manual. Hastings, NE: Mid-Nebraska Mental Retardation Services.
  61. Schalock R.L., Verdugo-Alonso M.A. (2002). Handbook on Quality of Life for Human
  62. Service Practitioners. Washington, DC: American Association on Mental Retardation.
  63. (Trad. it. Manuale di qualità della vita. Modelli e pratiche di intervento. Brescia:
  64. Vannini, 2006).
  65. Siniscalco M.T., Auriat N. (2005). Questionnaire design. UNESCO - International Institute for Educational Planning.
  66. Soresi S. (2016), Psicologia della disabilità e dell’inclusione. Bologna: il Mulino.
  67. Stanton E.A. (2007). The Human Development Index: A History. PERI Working Papers:
  68. -15. In: https://scholarworks.umass.edu/cgi/viewcontent.cgi?article=
  69. &context=peri_workingpapers.
  70. Trakhtenberg E. C. (2009). What constitutes happiness? Self-perceived quality of life
  71. scale: Theoretical framework and development. VDM: Saarbrücken.
  72. Verdugo M. A., Navas P., Gòmez L.E., Schalock R. L. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disabilities Research, 56(11): 1036-1045. doi: 10.1111/j.1365-2788.2012.01585.x.
  73. Verdugo M. A., Schalock R. L., Keith K. D., Stancliffe R. J. (2005). Quality of life and its measurement: important principles and guidelines. Journal of intellectual disability research, 49(10): 707-717.
  74. WHO (1995). The World health organization quality of life assessment. Position paper
  75. from the World health organization. Social science and medicine, 41(10): 1405.
  76. Zadeh L. (1975). The concept of a linguistic variable and its application to approximate
  77. reasoning. Information Science, 8(3): 199-249.
  78. Zadeh L.A. (1965). Fuzzy sets. Informational Control, 8: 338-353.

Metrics

Metrics Loading ...