Articoli scientifici
1/2019: Modelli della Mente
Mindful care: Mindfulness as a resource for family and professional caregivers
- Tonino Cantelmi
- Maria Beatrice Toro
- Francesca Boldrini
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Submitted
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febbraio 10, 2020
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Published
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2020-02-10
Abstract
In a world that appears unable to build up sound and sincere relationships, individual identities struggle in search for an adequate space to exist, express themselves and thrive. In front of a so deeply restricted “way of living”, that finds its satisfaction in an extreme “self-celebration”, the ideas of “being with” the others and “being there with the others” appear to be hardly achievable experiences.
Right now, the recovering of self-awareness by virtue of mindfulness definitely represents a worthy resource. Living knowingly “here and now” allows to listen yourself, prior to paying specific attention to others; it allows to raise one’s being in order to “live for the other” in a close encounter which proves sincere and devoid of any judgement. This attitude proves particularly valuable when the beholder requires participation and care, at whatever level, by professional, and often familiar, caregivers.
References
- Al Daken L.I. & Ahmad M.M. (2018). The implementation of mindfulness-based interventions and educational interventions to support family caregivers of patients with cancer: A systematic review. Perspectives in Psychiatric Care, 54(3): 441-452. DOI: 10.1111/ppc.12286.
- Al Jauissy M. (2010). Health care needs of Jordanian caregivers of patients with cancer receiving chemotherapy on an outpatient basis/Besoins en soins de santé des soignants jordaniens de patients cancéreux recevant une chimiothérapie en consultation externe. East Mediterr Health J., 16: 1091.
- Allen A.P., Curran E.A., Duggan Á., Cryan J.F., Chorcoráin A.N., Dinan T.G. et al. (2017). A systematic review of the psychobiological burden of informal caregiving for patients with dementia: focus on cognitive and biological markers of chronic stress. Neurosci. Biobehav. Rev., 73: 123–164. DOI: 10.1016/j.neu biorev.2016.12.006.
- Amutio A., Martínez-Taboada C., Hermosilla D. et al.(2015). Enhancing relaxation states and positive emotions in physicians through a mindfulness training program: A one-year study. Psychol Health Med, 20: 720-31. DOI: 10.1080/13548506.2014.986143.
- Arredondo M., Sabaté M., Valveny N., Langa M., Dosantos R., Moreno J. & Botella L. (2017). A mindfulness training program based on brief practices (MPBI) to reduce stress in the workplace: A randomised controlled pilot study. International Journal of Occupational and Environmental Health, 23(1): 40-51. DOI: 10.1080/10773525.2017.1386607.
- Baer R. (2003). Mindfulness training as a clinical intervention: a conceptual and empirical review. Clinical Psychology: Science and Practice, 10: 125-143. DOI: 10.1093/clipsy/bpg015.
- Behbahani M., Zargar F., Assarian F. & Akbari H. (2018). Effects of mindful parenting
- training on clinical symptoms in children with attention deficit hyperactivity disorder and parenting stress: randomized controlled trial. Iranian Journal of Medical Sciences, 43(6): 596-604.
- Beng T.S., Ahmad F., Loong L.C. et al. (2016). Distress reduction for palliative care patients and families with 5-minute mindful breathing: a pilot study. Am J Hosp Palliat Med, 33: 555-560B. DOI: 10.1177/1049909115569048.
- Brady S., O’Connor N., Burgermeister D. et al. (2012). The impact of mindfulness meditation in promoting a culture of safety on an acute psychiatric unit. Perspect Psychiatr Care, 48:129-37. DOI: 10.1111/j.1744-6163.2011.00315.x.
- Bränström R., Duncan L.G. & Moskowitz J.T. (2011). The association between dispositional mindfulness, psychological well-being, and perceived health in a Swedish population-based sample. Br. J. Health Psychol, 16(2): 300-316. DOI: 10.1348/135910710X501683.
- Brown K.W., Coogle C.L. & Wegelin J. (2016). A pilot randomized controlled trial of mindfulness-based stress reduction for caregivers of family members with dementia. Aging Ment. Health, 20: 1157-1166. DOI: 10.1080/13607863.2015.1065790.
- Brown K.W. Ryan R.M. & Creswell J.D. (2007). Mindfulness: theoretical foundations and evidence for its salutary effects. Psychological Inquiry, 18(4): 211-237. DOI: 10.1080/10478400701598298.
- Chambers R., Gullone E. & Allen N.B. (2009). Mindful emotion regulation: an integrative
- review. Clin. Psychol. Rev., 29(6): 560-572. DOI: 10.1016/j.cpr.2009.06.005.
- Chen K.W., Berger C.C., Manheimer E., Forde D., Magidson J., Dachman L. & Lejuez C.W. (2012). Meditative therapies for reducing anxiety: A systematic review and metaanalysis of randomized controlled trials. Depression and Anxiety, 29(7): 545-562. DOI: 10.1002/DA.21964.
- Dahlrup B., Ekström H., Nordell E. & Elmståhl S. (2015). Coping as a caregiver: a question of strain and its consequences on life satisfaction and health-related quality of life. Arch. Gerontol. Geriatr., 61: 261-270. DOI: 10.1016/j.archger.2015.06.007.
- Delaney M.C. (2018). Caring for the caregivers: Evaluation of the effect of an eight-week pilot mindful self-compassion (MSC) training program on nurses’compassion fatigue and resilience. PloS One, 13(11). DOI: 10.1371/JOURNAL.PONE.0207261.
- Donnchadha S.Ó. (2017). Stress in caregivers of individuals with intellectual or developmental disabilities: A systematic review of mindfulness-based interventions. Journal of Applied Research in Intellectual Disabilities, 31(2): 181-192. DOI: 10.1111/jar.12398.
- Dykens E.M., Fisher M.H., Taylor J.L., Lambert W. & Miodrag N. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, Aug, 134 (2). DOI: 10.1542/PEDS.2013-3164.
- Ebrahimzadeh M.H., Shojaei B.S., Golhasani-Keshtan F., Soltani-Moghaddas S.H., Fattahi A.S. & Mazloumi S.M. (2013). Quality of life and the related factors in spouses of veterans with with chronic spinal cord injury. Health Qual Life Outcomes, 11: 48. DOI: 10.1186/1477-7525-11-48.
- Enochs W.K. & Etzback C.A. (2004). Impaired student counselors: Ethical and legal
- considerations for the family. Family Journal, 12: 396-400. DOI: 10.1177/1066480704267240.
- Epstein-Lubow G., McBee L., Darling E., Armey M. & Miller I.W. (2011). A pilot investigation of mindfulness-based stress reduction for caregivers of frail elderly. Mindfulness, 2: 95-102. DOI: 10.1007/s12671-011-0047-4.
- Fish J., Ettridge K., Sharplin G., Hancock B., Knott V. (2014). Mindfulness based Cancer
- Stress Management: impact of amindfulness-based programme on psychological distress and quality of life. Eur J Cancer Care, 23: 413-421. DOI: 10.1111/ECC.12136.
- Grossman P., Niemann L., Schmidt S., Walach H. (2004). Mindfulness-based stress reduction and health benefits. A meta-analysis. Journal of Psychosomatic Research, 57(1): 35-43. DOI:10.1016/S0022-3999(03)00573-7.
- Hearn J.H., Cotter I., Fine P. & Finlay K.A. (2015). Living with chronic neuropathic pain after spinal cord injury: an interpretative phenomenological analysis of community experience. Disabil Rehabil, 37: 2203-11. DOI:10.3109/09638288. 2014.1002579.
- Hearn J.H. & Finlay K.A. (2018). Internet-delivered mindfulness for people with depression and chronic pain following spinal cord injury: A randomized, controlled
- feasibility trial. Spinal Cord, 56(8): 750-761. DOI: 10.1038/S41393-018.
- Hearn J. H., Cotter I. & Finlay K.A. (2019). Efficacy of Internet-Delivered Mindfulness for Improving Depression in Caregivers of People With Spinal Cord Injuries and Chronic Neuropathic Pain: A Randomized Controlled Feasibility Trial. Archives of Physical Medicine and Rehabilitation, 100(1): 17-25. DOI: 10.1016 / J.APMR.2018.08.182.
- Jastreboff A.M., Chaplin T.M., Finnie S., Savoye M., Stults-Kolehmainen M., Silverman W.K. & Sinha R. (2018). Preventing childhood obesity through a mindfulness-based parent stress intervention: A randomized pilot study. The Journal of Pediatrics, 202. DOI: 10.1016/J.JPEDS.2018.07.011.
- Kabat-Zinn J. (1994).Wherever you go, there you are. New York: Hyperion. DOI:
- 4236/psych.2015.640443,802.
- Kabat-Zinn J., Massion A.O., Kristeller J., Peterson L.G., Fletcher K.E., Pbert L. & Santorelli S.F. (1992). Effectiveness of a meditation-based stress reduction program in the treatment of anxiety disorders. The American Journal of Psychiatry, 149(7), 936-943. DOI: 10.1176/AJP.149.7.936.
- Kelley J.M., Kraft-Todd G., Schapira L. et al. (2014). The influence of the patientclinician
- relationship on healthcare outcomes: a systematic review and metaanalysis of randomized controlled trials. PLoS One, 9: e94207. DOI: 10.1371/JOURNAL.PONE.0094207.
- Keng S.L., Smoski M.J. & Robins C.J. (2011). Effects of mindfulness on psychological
- health: a review of empirical studies. Clinical Psychology Review, 31(6): 1041-56. DOI: 10.1016/J.CPR.2011.04.006.
- Kumar S., Croghan I., Biggs B., Croghan K., Prissel R., Fuehrer D., Sood A. et al. (2018). Family-Based Mindful Eating Intervention in Adolescents with Obesity: A Pilot Randomized Clinical Trial. Children, 5(7): 93. DOI: 10.3390/CHILDREN5070093.
- Kvillemo P. & Branstrom R. (2011). Experiences of a mindfulness-based stressreduction
- intervention among patients with cancer. Cancer Nursing, 34(1): 24-31. DOI: 10.1097/NCC.0B013E3181E2D0DF.
- Lamothe M., Mcduff P., Pastore Y.D., Duval M. & Sultan S. (2018). Developing professional caregivers’ empathy and emotional competencies through mindfulness-
- based stress reduction (MBSR): Results of two proof-of-concept studies. BMJ Open, 8(1). DOI: 10.1136/BMJOPEN-2017-018421.
- Lauche R., Cramer H., Dobos G., Langhorst J. & Schmidt S. (2013). A systematic review and meta-analysis of mindfulness-based stress reduction for the fibromyalgia syndrome. Journal of Psychosomatic Research, 75(6): 500-510. DOI: 10.1016/J.JPSYCHORES.2013.10.010.
- Lazarus R.S. (1966). Psychological stress and the coping process. New York: McGraw-Hill.
- Lengacher C.A., Kip K.E., Barta M., Post-White J., Jacobsen P.B., Groer M., Shelton M.M. et al. (2012). A Pilot Study Evaluating the Effect of Mindfulness-Based Stress Reduction on Psychological Status, Physical Status, Salivary Cortisol, and Interleukin-6 Among Advanced-Stage Cancer Patients and Their Caregivers. Journal of Holistic Nursing, 30(3): 170-185. DOI: 10.1177/0898010 111435949.
- Li G., Yuan H. & Zhang W. (2016). The Effects of Mindfulness-Based Stress Reduction for Family Caregivers: Systematic Review. Archives of Psychiatric Nursing, 30(2): 292-299. DOI: 10.1016/J.APNU.2015.08.014.
- Liu Z., Sun Y. & Zhong B. (2017). Mindfulness-based stress reduction for family carers of people with dementia. Cochrane Database of Systematic Reviews. DOI: 10.1002/14651858.
- Luker K., Cooke M., Dunn L., Lloyd-Williams M., Pilling M. & Todd C. (2015). Development and evaluation of an intervention to support family caregivers of people with cancer to provide home-based care at the end of life: a feasibility study. Eur J Oncol Nurs, 19: 154-161. DOI: 10.1016/J.EJON.2014.09.006.
- Lynch J. & Calahan R. (2017). The impact of spinal cord injury on the quality of life of primary family caregivers: a literature review. Spinal Cord, 55: 964-78. DOI: 10.1038/SC.2017.56.
- Manotas M., Segura C., Eraso M. et al. (2014). Association of brief mindfulness training with reductions in perceived stress and distress in Colombian health care professionals. Int J Stress Manag, 21: 207-25. DOI: 10.1037/a0035150.
- Newsome S., Waldo M. & Gruszka C. (2012). Mindfulness group work: preventing stress and increasing self-compassion among helping professionals in training. J for Spec in Group Work, 37: 297-311. DOI: 10.1080/01933922.2012.690832.
- Northouse L.L., Katapodi M.C., Schafenacker A.M. & Weiss D. (2012). The impact of caregiving on the psychological well-being of family caregivers and cancer patients. Paper presented at the Seminars in oncology nursing, 28: 236-245. DOI: 10.1016/J.SONCN.2012.09.006.
- Oken B.S., Fonareva I., Haas M., Wahbeh H., Lane J.B., Zajdel D. et al. (2010). Pilot controlled trial of mindfulness meditation and education for dementia caregivers. J. Altern. Complement. Med., 16: 1031-1038. DOI: 10.1089/acm.2009.0733.
- Petteys A.R. & Adoumie D. (2018). Mindfulness-Based Neurodevelopmental Care. Advances in Neonatal Care, 18(2). DOI: 10.1097/ANC.0000000000000474.
- Pinquart M. & Sörensen S. (2006). Helping caregivers of persons with dementia: which interventions work and how large are their effects? International Psychogeriatrics/IPA, 18(4): 577-595. DOI: 10.1017/S1041610206003462.
- Rose J., Madurai T., Thomas K., Duffy B. & Oyebode J. (2010). Reciprocity and burnout in direct care staff. Clinical Psychology and Psychotherapy, 17(6): 455-462. DOI: 10.1002/CPP.688.
- Ruskin D., Campbell L., Stinson J. & Kohut S.A. (2018).Changes in Parent Psychological
- Flexibility after a One-Time Mindfulness-Based Intervention for Parents of Adolescents with Persistent Pain Conditions. Children, 5(9), 121.
- Shapiro S.I., Astin J.A., Bishop S.R. & Cordova M. (2005). Mindfulness-Based Stress Reduction for Health Care Professionals: Results From a Randomized Trial. Int J Stress Manag, 12(2): 164-176. DOI: 10.1037/1072-5245.12.2.164.
- Sharkey S. & Sharples A. (2003). The impact of work-related stress of mental health teams following team-based learning on clinical risk management. Journal of Psychiatric and Mental Health Nursing, 10: 73-81. DOI: 10.1046/j.1365-2850.2003.00534.x.
- Siegel R.D., Germer C.K. & Olendzki A. (2009). Mindfulness: What is it? Where does it come from? Clinical Handbook of Mindfulness, 17-36. DOI: 10.1007/978-0-387-09593-6_2.
- Toro M.B. (2016). Crescere con la mindfulness. Guida per bambini (e adulti) sotto pressione. Milano: FrancoAngeli.
- Teasdale J.D. (1999). Metacognition, mindfulness, and the modification of mood disorders. Clinical Psychology and Psychotherapy, 6: 146-155. DOI: 10.1002/(SICI)1099-0879(199905)6:2<146::AID-CPP195>3.0.CO;2-E.
- Van Gampelaere C., Luyckx K., Van Ryckeghem D.M.L., van der Straaten S., Laridaen J., Goethals E.R., Casteels K., Vanbesien J., den Brinker M., Cools M. & Goubert L. (2018). Mindfulness, Worries, and Parenting in Parents of Children With Type 1 Diabetes. J Pediatr Psychol, Dec, 24. DOI: 10.1093/JPEPSY/JSY094.
- Westphal M., Bingisser M., Feng T., Wall M., Blakley E., Bingisser R. & Kleim B. (2015).Protective benefits of mindfulness in emergency room personnel. Journal of Affective Disorders, 175: 79-85. DOI: 10.1016/J.JAD.2014.12.038.
- Wheeler A.C., Miller S., Wylie A. & Edwards A. (2018). Mindfulness and Acceptance as Potential Protective Factors for Mothers of Children With Fragile X Syndrome. Frontiers in Public Health, 6. DOI: 10.3389/FPUBH.2018.00316.
- Whitebird R.R., Kreitzer M., Lauren Crain A., Lewis B.A., Hanson L.R. & Enstad C.J. (2012). Mindfulness-based stress reduction for family caregivers: a randomized controlled trial. Gerontologist, 53: 676-686. DOI: 10.1093/geront/gns126.
- Williams A.L. & McCorkle R. (2011). Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature.
- Palliat Support Care, 9: 315-325. DOI: 10.1017/S1478951511000265.
- Wood A.W., Gonzalez J. & Barden S.M. (2015). Mindful Caring: Using Mindfulness-Based Cognitive Therapy With Caregivers of Cancer Survivors. Journal of Psychosocial Oncology, 33(1): 66-84. DOI: 10.1080/07347332.2014.977418.
- Zarit H.S., Kim K., Femia E.E., Almeida D.M., Savla J., Molenaar P.C.M. (2011). Effects of adult day care on daily stress of caregivers: A within-person approach. The Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 66B(5): 538-546. DOI: 10.1093/GERONB/GBR030.